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Does Anyone See Me? Playing Host to the Uninvited Guest of Post-Polio Syndrome

Eastern University, St. Davids, Pennsylvania

Drawing on Arthur Frank's illness narratives, this autoethnographic account of an adult child's experience as a child of a parent with post-polio syndrome (PPS) explores the influence of disability on how the adult child sees herself. The essay is centered on the author's re-remembrance of her child as she understands it through her mother's chaos narrative. The author explores how living in the shadows of PPS has prompted her to ask the world around her: Does anyone see me? The journey through the crisis of PPS has pushed her to confront PPS head on and to challenge its claim that she does not matter.

Key Words: autoethnography • illness narrative • post-polio • disability

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